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Dublin: 8°C Wednesday 19 May 2021

#alpha-1

# alpha-1 - Tuesday 21 November, 2017

'Obviously life means nothing to these people': Patient dies waiting for deal on vital medication
# Respreeza
From TheJournal.ie
# Respreeza

'Obviously life means nothing to these people': Patient dies waiting for deal on vital medication

Nov 21st 2017, 6:00 AM 13,471 Views 48 Comments

The HSE has been negotiating with pharmaceutical company CSL Behring to make Respreeza available to Alpha One patients.

# alpha-1 - Wednesday 20 September, 2017

'Inappropriate and unethical': Varadkar backs life-saving lung disease drug for some users after HSE fails to fund it
# Alpha-1
From TheJournal.ie
# Alpha-1

'Inappropriate and unethical': Varadkar backs life-saving lung disease drug for some users after HSE fails to fund it

Sep 20th 2017, 5:26 PM 14,015 Views 18 Comments

21 Alpha-1 patients in Ireland have been receiving Respreeza up until now through a compassionate use programme.

# alpha-1 - Wednesday 9 August, 2017

'We wouldn't be here without it': HSE will not fund life-saving lung disease drug
# Alpha-1
From TheJournal.ie
# Alpha-1

'We wouldn't be here without it': HSE will not fund life-saving lung disease drug

Aug 9th 2017, 4:17 PM 12,632 Views 31 Comments

21 Alpha-1 patients in Ireland have been receiving Respreeza up until now through a compassionate use programme.

# alpha-1 - Thursday 4 May, 2017

'I'm living proof it works': Patients with severe lung condition call for access to 'life-changing' drug
# Alpha-1
From TheJournal.ie
# Alpha-1

'I'm living proof it works': Patients with severe lung condition call for access to 'life-changing' drug

May 4th 2017, 6:00 AM 14,608 Views 7 Comments

People are set to lose access to Respreeza at the end of the month.

# alpha-1 - Saturday 13 September, 2014

Science Changes Lives: Medical trial is saving me from illness that took my two sisters
# Experimental
From TheJournal.ie
# Experimental

Science Changes Lives: Medical trial is saving me from illness that took my two sisters

Sep 13th 2014, 8:30 PM 21,945 Views 12 Comments

A genetic test pinpointed a destructive lung condition in Michael McNamee’s family – now experimental medicine is helping him to beat the odds.

# alpha-1 - Sunday 19 January, 2014

Ever heard of Alpha-1 deficiency? Here's why you might want to get tested
# Genetics
From TheJournal.ie
# Genetics

Ever heard of Alpha-1 deficiency? Here's why you might want to get tested

Jan 19th 2014, 5:00 PM 36,616 Views 5 Comments

One in 25 people is a carrier for Alpha-1 deficiency, but it remains somewhat of a hidden disease.