Advertisement
GAA
Soccer
Rugby
Golf
Racing
More
More
Upgrade
Subscribe
Sign in
Subscribe to The 42
Unlock unlimited access
See sport differently with our news, analysis, podcasts and storytelling
More Sports
Fitness
MMA
Other
Sport Features
Rugby Weekly
Editor's Picks
Quizzes
Behind the Lines
Partner Publications
TheJournal.ie
The latest Irish and international breaking news, reports and coverage
Noteworthy
A platform helping fund the type of in-depth journalism that the public wants to see
Subscribe now
Subscribe to The 42
Unlock unlimited access
See sport differently with our news, analysis, podcasts and storytelling
More Sports
Fitness
MMA
Other
Sport Features
Rugby Weekly
Editor's Picks
Quizzes
Behind the Lines
Partner Publications
TheJournal.ie
The latest Irish and international breaking news, reports and coverage
Noteworthy
A platform helping fund the type of in-depth journalism that the public wants to see
Subscribe now
#
sma
Advertisement
Last year
2023
Heel Prick Test
Newborn babies to be tested for Spinal Muscular Atrophy from next year
3
15.1k
Nov 26th 2023, 5:59 PM
All time
sma
'Timing is key': Parents call for inclusion of rare genetic disease in newborn heel prick test
2
12.2k
Jun 28th 2022, 6:00 AM
sma
Spinraza campaigners 'finally have hope' as HSE approves access to drug for rare disease
5
8.7k
Jun 11th 2019, 2:00 PM
Spinraza
'We need to do right by families': Call for HSE to fund drug for rare disease after NHS approval
4
6.3k
May 15th 2019, 12:29 PM
Spinraza
'We are failing these children spectacularly': Row over drug with 'exorbitant' cost rumbles on
13
9.3k
Mar 10th 2019, 8:00 AM
Spinraza
'Look in my child's eyes and tell him his life is not worth saving': Parents call for access to medication
28
10.4k
Feb 28th 2019, 12:52 PM
Spinraza
'A price has been put on the value of life': HSE will not reimburse drug for children with rare condition
62
23.5k
Updated
Feb 25th 2019, 7:54 PM
Spinraza
'You wouldn't tell a child they couldn't have chemo, but our son is being denied the medication he needs'
17
19.4k
Feb 3rd 2019, 4:00 PM
SPINAL MUSCULAR ATROPHY
'If she gets another chest infection she probably won't make it, that’s the reality'
16
32.0k
Jan 7th 2017, 7:25 AM
Jobswatch
Small and medium businesses could* deliver 20,000 jobs
11
2.9k
Dec 28th 2012, 6:45 AM
Report an error, omission or problem:
Message:
Your Email (optional)
Submit
Create Email Alert
Create an email alert based on the current article
Email Address
One email every morning
As soon as new articles come online
Submit
Sign in
or create
a free account
To continue reading create a
free account
Or sign into an existing account