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Dublin: 11°C Saturday 17 April 2021

#Duchenne muscular dystrophy

# duchenne-muscular-dystrophy - Friday 22 February, 2019

'He has a chance at life now': HSE grants access to drug that could help boys with rare condition keep walking
# Translarna
From TheJournal.ie
# Translarna

'He has a chance at life now': HSE grants access to drug that could help boys with rare condition keep walking

Feb 22nd 2019, 8:38 PM 22,613 Views 5 Comments

At least five boys in Ireland have Duchenne Muscular Dystrophy, a muscle-wasting condition.

# duchenne-muscular-dystrophy - Thursday 7 September, 2017

'He’s still walking but he’s struggling': Parents fight for access to 'life-changing' drug
# Muscular Dystrophy
From TheJournal.ie
# Muscular Dystrophy

'He’s still walking but he’s struggling': Parents fight for access to 'life-changing' drug

Sep 7th 2017, 6:00 AM 10,351 Views 7 Comments

The families of two boys are fighting for access to Translarna, a drug that could help delay the effects of a rare muscle-wasting condition.

# duchenne-muscular-dystrophy - Saturday 13 May, 2017

Two boys fighting for access to drug that could help them keep walking From TheJournal.ie

Two boys fighting for access to drug that could help them keep walking

May 13th 2017, 8:15 PM 13,909 Views 12 Comments

Translarna, the only treatment for boys with a specific type of Duchenne muscular dystrophy, costs €400,000 per patient per year.

# duchenne-muscular-dystrophy - Wednesday 7 September, 2016

'A treatment that can help my son is being denied, it's agonising'
# Duchenne Muscular Dystrophy
From TheJournal.ie
# Duchenne Muscular Dystrophy

'A treatment that can help my son is being denied, it's agonising'

Sep 7th 2016, 7:00 AM 14,859 Views 10 Comments

Duchenne muscular dystrophy affects approximately one in 3,500 male births.

# duchenne-muscular-dystrophy - Monday 7 September, 2015

'When I was born there was no hint of any disease'
# Duchenne Muscular Dystrophy
From TheJournal.ie
# Duchenne Muscular Dystrophy

'When I was born there was no hint of any disease'

Sep 7th 2015, 6:10 AM 26,243 Views 6 Comments

One in every 3,500 boys are affected by Caleb’s condition.